Sunday, February 28, 2016

More than Fabric! (The Story Behind My AGT Audition)

 
America's Got Talent Audition

Tables stacked with perfectly pressed tops nestled side by side, walkways surrounded by mannequins showcasing the latest fads, and shiny silver racks draped with styles to fulfill almost every girl’s dream; the mall is a shopper’s paradise and the perfect spot to track down an outfit for that special evening. Yet in spite of the allure and numerous selections, I most often walked out of those thick glass doors staring at my reflection, empty handed and depressed.  

For many years the mall was more of a museum than a playground for me, with many beautiful clothes to admire, but little for me to buy, wear, and enjoy.  I had a noticeable deformity in my back resulting from scoliosis, a curvature of the spine. I was incredibly self-conscience about my back.  I didn’t talk about it!  I tried living in denial, shopping for clothing to hide behind - pretending there was nothing wrong.  Most clothes were form fitting which showcased my deformity; therefore, were off limits to me – unattainable….. Shopping for clothing was an ENORMOUS chore!

I’d scan the racks for hoodies, loose fitting t-shirts, sweat shirts, loose fitting jackets, and button up tops --- these often concealed my rib hump. **Definitely not the type of clothes that I wanted to wear!**  I wanted to wear beautiful and fashionable clothing.  Instead, I wore clothes that I felt comfortable in, that I could disappear inside of, and try to forget about the deformity behind me.  Every now and then I’d get lucky and find something fashionable and concealing, but honestly I didn’t care for most of my wardrobe.  My clothes were based more on necessity than style; a way to cover my pain and pretend everything was okay. It wasn’t uncommon for me to go into the dressing room with 15-20 items and leave with nothing.  Even more frustrating, after spending lots of time shopping for shirts, they would sometimes shrink and then I wouldn’t wear them anyway.  I always carried a mirror with me, so when trying on clothes I could check my profile in every direction.  I was on a mission to HIDE my back from the WORLD!

Each night arose the potential for an emotional breakdown when heading to my closet to choose an outfit for the next day; sometimes it was quick and painless----- other nights ended with me curled up on the bed in tears.  On those nights I’d often scan the web in search of hope, in search of a new treatment ---- “SOMETHING” to dry the tears!  After years, my search finally yielded a result – a doctor near me started an exercise based treatment program for adults and kids – no bracing or surgery!  I scheduled an appointment with Dr. Nick on my birthday – the BEST gift ever!! 

This began my transformation, my extreme makeover!  Today I’m a whole new me.  My rib hump has been reduced, my pain (physical and emotional) has vanished, and my curve has decreased from 42.5° to 36° so far (15% reduction).  My limits have been removed, my chains broken – I have been freed from the prison that I sentenced myself to many years ago!  My motto now is this – “I Will Hide No More”! 

Through my experience I’ve been inspired to reach out and share hope with others and spread awareness.  There are others HIDING, others HURTING, others that have GIVEN UP HOPE ----- by making some noise, sharing my story, and shining some light on this condition maybe I can reach them, in hopes that they too can experience this same freedom.

That is what inspired me to audition for America’s Got Talent.  My sister learned about the Kansas City auditions and sent me the information.   Initially, I wasn’t going to audition, but after a little thought I changed my mind.  I thought about how I could be missing an opportunity to spread hope by not attending.  I immediately jumped into action and began working on a sash to spread awareness and tell my story.  In addition, I had to find the perfect dress!!!  Something eye catching, that would stand out - in the past this would have been an absolute NIGHTMARE for me, but this time was different.  This was the first time I’d ever been shopping for an evening dress without having to worry about concealing my back.  It was a HUGE moment for me!  So many choices – yes, I had choices!!  I swept through the racks with my mom and aunt, grabbing every dress that caught my eye and headed for the dressing room.  As I began trying on the dresses, past memories and feelings flashed before me. I began remembering the numerous unhappy and tearful dressing room experiences of the past and in that moment it hit me - how much my life has changed in a year!  This led to more tears, but this time it was initiated by overwhelming joy and happiness. 
My Sash
My Story
Audition day, I walked about 5 blocks in the January cold to the convention center to register and wait in the massive audition line.  After making it through registration I waited in the holding room to audition.  I expected to wait for hours, complete my 90 second audition, and head home, but to my surprise I was approached by the staff and asked about my dress and sash.  I was elated.  I got to answer some fun questions about the show in an interview, and be in some crowd shots.  It was a blast!  Regardless of whether I make it to the next step of the process or not, I’m so glad I auditioned.  Like I told them – it was a miracle for me to audition for them wearing my sparkly pink sequined dress that day.  Because of the deformity in my back I never would have worn that dress before, but because of my treatment I stood before them – ABSOLUTELY CHANGED!  It was such a special day for me!  That day my 90 second performance was more than just an audition and my dress was much MORE THAN FABRIC!
Marce
I auditioned in person and online.  My online audition features a little about my story and is posted on the page below. 

Sharing my journey at www.facebook.com/thecrookedlife

     





Sunday, February 21, 2016

The Power to Change a Child's Life Through a Little Observation.

All of us have the power to change a child's world.  The change I'm referring to doesn't involve mountains of time or even a large charitable contribution.  It's a fairly simple step that has the potential to change a life.  It could change one's self image, interactions with others, as well as improve their happiness and quality of life. All you have to do is be observant.  Screening your child for scoliosis is so very important.  Why?  Because early diagnosis leads to better outcomes!

As a scoliosis patient myself I understand how this condition affects a person physically and emotionally.  My life --- the last 27 years of my story could have been positively altered if the treatment options available today were available when I was diagnosed.  For me, watching and waiting eventually led to a 42.5 degree curve, pain, a rib hump that I worked extremely hard everyday to conceal, and much emotional pain.  I worked hard EVERYDAY to hide my deformity!  Not a day went by in which my back was absent from my mind.  For many years I hoped and prayed for a new treatment that could help me. As an adult with scoliosis I was told there was nothing I could do for curvature correction except surgery, but shouldn't get surgery unless absolutely necessary because of the risks involved.  Today there are treatment approaches that utilize specific adjustments, vibration therapy, and exercises to correct and retrain the neurological control of the spine to stabilize and correct curvature.

I'm thankful that I'm in treatment today and have experienced a total life change, but this didn't happen for me until 27 years after my diagnosis (diagnosed at 12 years old).  With early diagnosis treatment outcomes and results are generally better.  It could change a child's life so that they do not have to experience what I did for so many years.  Early detection can help many children avoid the need for surgeries, bracing, emotional scars, pain, and low self-esteem. 

I hope I've painted a picture to show how this SMALL step of scoliosis screening can lead to BIG changes for a child - not only in their childhood, but throughout their lifetime. 

Here's some info provided by ScoliSMART that you may find helpful.

Sunday, January 10, 2016

My Scoliosis Treatment & Updated Results - Includes Q&A

I'm so excited to share my updated treatment results.  My curve has been reduced from 42.5° to 36° so far (a 15% reduction in Cobb Angle).  I wanted to share my experience with you so made a video with pictures of the treatment, explanation of the exercises, and pictures of my results. Also, I'll answer some questions that you might have below.



Q:
How old are you? 

A:
What girl likes to reveal her age☺, but I will just for you.  I began treatment at 39 years old.  I recently turned 40.  So, isn't the fact that I'm getting results exciting!

If you go to an orthopedic doctor will they offer "an adult" a treatment program to decrease curvature?  I'm guessing most people would experience what I did, a response something like this:

"There's nothing that can be done to improve your curvature.  Surgery is the only option which is for severe cases." 

Think about it - A doctor told me nothing could be done to improve my curvature, but I'm experiencing improvement.  That's amazing to me!

Q:
How much time do you spend doing daily home exercises?

A:
I do about an hour in the morning and evening.  The exercises can be done while watching t.v. or scrolling through Facebook, so I'm just combining the exercises with an activity I would be doing anyway.  In addition, it's been beneficial in more ways than just my spine.  It's added tone to my legs and muscle to my arms.

Q:
Where do you go for treatment?

A:
My treatment is located in Belton, Missouri with CLEAR Doctor Nick Weddle.  It's indeed been a place of hope and restoration.  Dr. Nick and his team are amazing. He's passionate about his work and cares about the individual needs of his patients. My life is CHANGED because of his work.

Q:
Are there other locations for treatment?

A: 
There are other doctors providing this treatment and similar treatments.  I pasted some links below to get you started in your search and see if there's a doctor in your area.  Do your homework when selecting a doctor.  I think it's important to find a doctor that is as passionate about their work as you are about achieving results.  Most have free consultations, so don't be afraid to contact them and ask questions.  You could always join a FB scoliosis group to learn about what's working for other scoliosis patients.  A group I enjoy is https://www.facebook.com/groups/ScoliosisWarriors/

My doctor: http://www.scoliosiskc.com/
Located: Belton, Missouri

ScoliSMART: http://www.treatingscoliosis.com/
Located: Lititz, PA  -  Green Bay, WI  -  New York, NY  -  Grand Blanc, MI  (Planning Expansion)

CLEAR: http://clear-institute.org/
Located: Many Locations (Check website)

Rhino Scoliosis Center: http://www.rhinosc.com/
Located: Wheat Ridge, CO

Q:
What if there isn't a doctor located near me?

A:
Many of these doctors have intensive treatment programs where you can travel to the office for a several week treatment, then continue treatment with home exercises. Again, take advantage of the free consultation, if available (in most cases it will be).

I hope this information has been helpful.  I wish I'd known about this treatment option earlier, so I'm just trying to spread the word and let others know that there is hope to be found!

Never give up, I'm no one special!  I'm just an adult with scoliosis who wasn't provided with any hope --- then one day found some and began working hard to see results! - it's happening for me, so it could happen for you too! 











     

     

Thursday, December 24, 2015

"Duped" - Scammed by an Online Clothing Site that Advertises on FB!

 
 
While scrolling through Facebook you happen to pass an ad for the most beautiful dress you've ever seen; you look below and notice the rock bottom price.  Now that you know it's in your price range you begin picturing yourself in it.  It doesn't take long before you're ready to order.  One rationalizes, DressLily has over 5 million "likes" on FB, they must be legit.  The item reviews on the site seem to check out and the claims of amazing customer service is enough to put ones mind at ease --- is it too good to be true? 
 
It was for me!  I was SCAMMED!  I don't want this to happen to anyone else, so I'm telling my story.  I decided to make the BEST of a bad situation by turning this terrible transaction into a fun project by sharing my experience and hopefully rescuing others from the same fashion fate.  I was duped; therefore, I tried duplicating the pictures from the DressLily website against the items from my order to show the difference in what is being advertised and what is being received.  Before I show you these ridiculous pictures, let me quickly tell you a little about my story.
 
I have scoliosis.  I've been hiding for years behind over sized clothes because of a protruding shoulder.  I would purchase loose fitting clothes to help hide my deformity.  It affected my life in a major way.  I was very insecure about my back.  After 20 years of hiding, last December I found a new treatment option.  I was ecstatic!  I began treatment last December and it has changed my life.  My back looks so much better! 
 
 
So recently, I've been able to donate many of the over sized clothes that I didn't like and slowly begin replacing them with clothes I LOVE.  In order to do this I asked my husband to get me clothes for Christmas.  I went to the DressLily website and picked all my favorites and he ordered them.  My entire Christmas budget was used for this order. I was so excited to receive them, but when they arrived and I opened the package, all I wanted to do was cry. I know I'm blessed and there are a lot bigger problems in the world right now, but this was the first time I've ever been able to confidently order shirts from a website.  Before this day I'd never order shirts online -- I had to try them on first to make sure they hid my protruding shoulder.  So this was a special event for me ---- and then this happened!!  I was so discouraged, but I snapped out of it.  I realized I could turn this into an opportunity to help others avoid the same situation!  So, let's look at the pictures!!!!!
 
The first picture is the item I ordered; the second picture is me with the item I received.  What do you think?!!
 

This shirt actually came with misspellings.  It should say, "A girl knows her limits -
A wise girl knows she has none."  Plus, it's made out of different fabric and cut differently around
the neckline.
 
Notice the uneven cut around the neckline, the lace hanging from the sleeve, the cut of the
 dress/waistline is inconsistent, the bottom of the dress is shaped differently, and it's made of
different fabric.

 
 
This shirt doesn't seem so bad on it's own, but look a little closer.  There are two seams down the front
of my shirt that are not in the pictured shirt.  For an even closer look see the picture below.
 
  

These two seams shouldn't be there.
  
My shirt is made out of different fabric (very thin) and like all of the other items
very poor quality.

This is the worst item of all!  It looks nothing like what I ordered.  I wouldn't even wear this
for a Halloween costume!  Look at the horrid waistline!

This one doesn't seem to look that bad, right!  Obviously the fabric is different, but see the picture
below for an up close look at the poor quality around the sleeves.

The lace isn't sewn to the shirt properly.  It pulls away from the fabric underneath.
 

Wow, this shirt is all sorts of messed up; there's no extra flap sewn on the front of mine.
  It's also made out of different fabric.

The embroidery is wider, the shirt is cut differently, and I'm certain it's
made out of different fabric.  See below for more on this one.

Poor quality - not even sewn all of the way.

Made of different fabric.  Look at the sleeves- they're clearly different.
Also, there's a hole under the sleeve - see below.

 
Well, that's my crazy little story.  I hope telling it helps others avoid a hassle. 




Sunday, December 20, 2015

It's What's on the Inside that Counts!

 
 
 
It's what's on the inside that counts!  We all have THOSE days --- days of weakness, pain, insecurity, and doubt.  Those DAYS do not define us!  Those moments are temporary.  Keep the hope because ONE day, ONE moment, ONE encounter can change our lives forever! 
 
*Determination
*Vigor
*Motivation
*Gumption
*Inspiration
*Strength
 
 
It's these qualities that get me through each day.  It's what gets me out of bed at 5 a.m. to do my home therapy exercises.

 







And when I get home after working 10 hours, instead of relaxing, it's what gives me the strength to do my home therapy exercises all over again.

It's what's on the inside that counts - it gives me the strength to fight each day.  Do I know what the future holds? NO........ BUT if I don't fight, I'll never know what great things can be achieved!

Yes, it's what's on the inside that counts!  It's how I've been able to attain the results that I have so far.  Through treatment my pain is gone, my thoracic curve has gone from 42.5 degrees to 38, the appearance of my back has improved, as well as my quality of life! 

For years I had many bad days - but ONE day, One moment, One encounter changed my life and gave me the hope to get where I'm at now and it's giving me the determination to press on.....

Whatever you're going through --- don't give up!  Sometimes we have to just start walking in order to find our destination, our destiny.  If we don't take the first step we'll never go anywhere.

Enjoy this day to the fullest!

 
 



Wednesday, November 25, 2015

"Thankful" - My Break-Up with Pain




 I AM THANKFUL - I AM CHANGED – I AM INSPIRED
I AM A SCOLIOSIS WARRIOR!
 
 
I AM one of many with an alphabetic character embedded into their spine (C or S --- mine is a C), one who rolls out of bed before the crack of dawn each morning to put on her armor (aka - torso trainer) and fight, and one who has felt and dealt with the physical and emotional pain of this condition for years and is standing up to say, “I'm Not Gonna Take It Anymore!” 
 
(Picture: My torso trainer, SLA, and head weights - I do this twice a day, 20 minutes each time)

Make no mistake, I haven’t always had this gumption.  In fact for years I was a hopeless and (at times) emotional wreck.  I had a long standing relationship with Pain that I just couldn't end until this year.  Now it's FINALLY over - kicked to the curb, dead and buried…  This Thanksgiving I have even MORE to be grateful for; my family, friends, a delicious dinner, a roof over my head, and a great job are all at the top of the list, but THIS YEAR I’m also thankful for something else: MY recent break-up --- with Pain!
 
(Picture: I had pain surrounding my entire right shoulder blade and frequent soreness in my shoulders.)
 
I was diagnosed at age 12, but didn't meet Mr. Pain until my early 20’s. Hanging out with him was always a negative experience.  I often tried to break things off, but he wouldn't go away! I have plenty of journal entries dedicated to this horrible, rotten, "no good for me" piece of scum!  He often hurt me, caused me to feel terrible about myself, constantly reminded me of the hump protruding from my back, and dictated what I could and could not do! I HATED him, but I just couldn’t rid myself of him.  I wanted to, but I needed HELP to do it.

    (Picture: One of my journal entries)

After years of allowing Pain to control me, limit me, and hurt me –I found a doctor to help me end the abuse.  It took several months of treatment and therapy (home exercises), but I was able to end this awful relationship and move on.  I don’t ever want Pain back in my life again! 

(Picture: Going in for my scoliosis treatment - Dr. Nick Weddle) 

*Thankful.  Yes, THANKFUL I AM. *
 
 
***Stay tuned - I'm making a new video about my treatment soon.  

Facebook/The Crooked Life
 
If you’re looking to end a relationship with Pain - here are a few tips that might help:
 
(Here is a video of my doctor talking about scoliosis and the treatment program I'm doing that eliminated my pain.)
 
Here is a great resource provided by ScoliSMART on How to Keep Your Back Healthy.