Tuesday, September 27, 2016

Never give up HOPE! My AGT Experience Video Blog (Scoliosis Awareness)


Things may seem hopeless sometimes,
but in a moment everything can change!!

1 1/2 years ago I NEVER would have done this!   I never would have been brave enough to talk about my condition.  The word scoliosis was never spoken from my lips unless someone asked why I wore hoodies all of the time, or asked what was wrong with my back, ect.... I cried anytime that happened, so everyday I worked hard to cover my back with loose fitting clothing.  The doctors I seen said there wasn't any treatment options for me as an adult with moderate scoliosis.  I was told it was best to just live with it.  I was living a life with no hope; no treatment options!  Then 1 1/2 years ago my life changed when I found a new non-surgical treatment.  Now I'm talking about scoliosis all of the time, sharing my story of hope with others -- I even sported my scoliosis awareness sash during the America's Got Talent auditions and ended up in a few clips on the show, wearing a dress that I never would have worn before treatment.  My point is this!  No matter how hopeless you feel - things can change!  You never know what can happen to change the course of your life. All it takes is one day, one moment!  NEVER give up HOPE!!  It's overwhelming to think how much my life has changed - I'm so very thankful.  If anyone is interested in seeing the video I made about my experience at the AGT auditions and the clips I was in, you can check it out below.  Marce♥♥









Sunday, September 11, 2016

SCOLIOSIS: One of 52 doctors in the WORLD providing a specialized non-surgical treatment for Scoliosis - located in KANSAS CITY.



One of 52 Doctors in the World Providing a Specialized Non-Surgical, Non-Bracing Treatment for SCOLIOSIS – Located in KC!

Dr. Nick Weddle opened the doors of hope with a new option for scoliosis treatment in Kansas City.  This treatment is unique, it’s a non-surgical and non-bracing treatment that helps maintain and correct curvature. For many years the standard care for scoliosis treatment has been bracing and surgery.  Bracing is used as an attempt to stop the progression of a curve in growing youth, while surgery is recommended for those with a severe curvature. These two treatment options leave little hope for patients who have reached skeletal maturity and have mild to moderate scoliosis.

According to Dr. Nick Weddle, “Many patients are still told that their only options are bracing and surgery.  Most people are basically told they just have to live with it unless it gets big enough for surgery, where they fuse metal rods to your spine.”  Thankfully, this is no longer the case.

In the summer of 2015, Dr. Weddle received national recognition by becoming one of 52 doctors in the world to be certified in the CLEAR non-surgical treatment for scoliosis.

He says, “This process has taken me several years to complete, and has changed the treatment options for the 18,000+ people suffering with scoliosis in the KC area, and even the Midwest too.”

I am a patient whose hope was restored!  Throughout the years I visited multiple doctors in search of treatment, in search of help, but found none.  As an adult my curve reached 42.5 degrees - causing pain, limitations, insecurity, fear, and a noticeable deformity in my back.  I desperately wanted to do something to improve my condition, but I couldn’t locate any treatment options for an adult with moderate scoliosis.  I felt helpless and had much anxiety about how this condition would continue to affect me through time --- and then I found Dr. Nick!

The physical pain, emotional scars, fear, and self-consciousness are gone!  It's hard to believe after years of laboriously working to hide the postural deformity in my back (and being told there was nothing I could do about it) - that I’ve arrived here in this place. Today I stand in this place - the same girl, but with a different reflection; a woman who has made a statement to Hide No More and remain confident while continuing to strive for correction.  I'm so happy with the physical and visual changes that I've experienced, and so very thankful for this treatment!
I put this short video together to tell my story of hope --- may it deliver hope to others.   It includes a few pictures to show how this treatment has changed my world.   



If you're interested in learning more about this treatment: ScoliosisKC

Thanks for visiting!♥


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Sunday, September 4, 2016

Scoliosis - Learning the Lingo (Crossword Puzzle)



Scoliosis - Learning the Lingo

Having a conversation with your doctor about scoliosis can be a bit overwhelming (especially in the beginning) until becoming familiar with the lingo.  

I think it's important to understand our condition, not only to communicate with the doctor, but to be actively involved in our care to help us make the best decisions regarding our health and treatment.  So, I've been learning some terms.  I think it's easier to learn when it's fun, so put together this crossword; it helps me retain the information. 

I'm passing it along in case anyone else finds it helpful. I created some guides to help as well.  You can scroll to the bottom for the answer key. In addition, I've included an infographic provided by ScoliSMART with some great information.  Have Fun Learning!

If you prefer to do the crossword digitally instead of printing - click below:
DIGITAL VERSION


SCOLIOSIS CROSSWORD - LEARNING THE LINGO



Guides to Help Complete Crossword






Scroll Down for the Answers:


Answer Key:


Thanks for visiting!♥

Subscribing to blog from your phone:  Click on "View web version" at the bottom of the blog and submit your email address at the top of the screen.

Sharing my journey at www.facebook.com/thecrookedlife

Here's an infographic provided by ScoliSMART that you may find helpful.